It can make a big difference in our journey to know that there are others who understand our challenges, are willing to lend an ear and listen with compassion, and who can help share ideas from a place of lived experience. Support groups are organized in a variety of formats. Below are a few suggestions […]
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Need Help Assembling Support Team?
Assembling a support team can be crucial in helping everyone during the acute stages of helping your child, as well as during the longer treatment period that will likely take place over time. One support team may look very different from another. Your child’s medical response team is different than the support team described on […]
Patient Advocates / Patient Navigators
Patient Advocates and Patient Navigators are just two of many terms that describe people who understand the system of care that can seem like a labyrinth of mirrors. Often, people who have decided to perform these functions have ourselves experienced the overwhelm of being in crisis and having to struggle to find our way through […]